Why I’m Here

I thought I would start this by telling you a little about me and why I am starting this blog. I am a mom of two amazing boys (ages 16 and 6) and a wife to a wonderful man. We live on a Texas cattle ranch that has been in my husband’s family for several generations. I was born and raised in the city and never dreamed I would be living the ranch life but I love it! We are very private people who like to stick to ourselves. I’m not really big into the whole sharing thing, so starting this blog is way outside my comfort zone. So why am I doing it? My youngest son has a rare disease called VACTERL. The odds of having a child born with this is around 1 in 10,000. I have never met face to face with another person who has it or has a child with it. There are a lot of struggles that come with raising a child with a rare disease, one of those is feeling very alone. I have decided to put my story out there in hopes that someone who is going through this same thing will read this and not feel so alone. While I won’t be discussing my son’s daily struggles, that’s his story to tell when and if he chooses, I will be talking about my own difficulties that go along with it. My pain doesn’t come close to the pain he experiences, however being a caregiver to a medically complex child can be overwhelming at times. I hope that people can read this and know that there are people who understand what they are going through.